Category Archives: Achievement

Christopher’s Inaugural Pumpkin Smash 2015

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Mr.Christopher’s Pumpkin Smash Please participate in the inaugural Mr.Christopher’s Pumpkin Smash, to help “SMASH OUT” MPS! It’s easy! All you have to do is: 1-buy a small sugar pumpkin 2-paint it purple 3-Friday, October 16th video tape you or a family member smashing your purple pumpkin! 4-Give a brief explanation of what you are doing […]

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One YEAR Post Transplant!!

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One year ago today Harken had her Bone Marrow Transplant. What a year it has been. We are so proud of you and love you Bear!!!

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ONE YEAR!

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One year ago today, Harken was diagnosed with MPS-1, Hurler’s syndrome. Now today represents the news from the doctors that Harken is healthy enough to come out of quarantine. We are so proud of this beautiful baby girl and are so thankful for each day!!

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Day 300!!

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We are so blessed to spend the weekend celebrating Harken’s 300th day post transplant. We are so proud of our strong little girl!!!

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Our Miracle!

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It is hard to believe that we were discharged from the hospital 6 months ago!!! What a change, what a miracle!

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Happy Halloween!

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    Wonder Woman and Spiderman!!

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DAY 200!!

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Today we celebrate Harken’s 200th day post transplant. It has been a difficult journey, but also one that is filled with so much hope. Seeing her run and laugh makes it all worth it!!!!

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Feelin’ GOOD!

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We are so happy to post that Harken is getting stronger and healthier day by day. She is finally tube free, no CVL or PICC line!!! Not only is she the happiest toddler ever, but she is running and back to hitting major milestones. Again, a huge thanks goes out to all those who have […]

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DAY 100!!!

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We can’t believe that today marks 100 days post transplant. We are so proud of our brave and happy little girl. Everyone’s prayers and support has helped us stay strong. So thankful for this silly girl!  

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We’re Walking Again!

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We can’t believe that it has been three weeks since we left the hospital. Harken continues to amaze us. Not only are her counts rising and her cells growing, but she has started to walk again!!! We are so proud of all of her accomplishments and can’t believe how strong she is!!!! We should hear […]

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