Tag Archives: hurler

Meet Charlotte

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“Our 9 month old granddaughter Charlotte Condon, daughter of Kim O’Kane and Christopher Condon was born with a very rare and severe genetic disorder called Hurler Syndrome or MPS1, in which her body doesn’t produce the enzyme it needs to break down specific sugars. This affects every aspect of Charlotte’s poor little body – literally […]

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Happy 4th Birthday Bear!

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Happy 4th Birthday BEAR!

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Eversource Walk for Boston Children’s Hospital 2017

Why Walk? The Eversource Walk for Boston Children’s Hospital helps fund the exceptional care and groundbreaking research that are synonymous with Boston Children’s. Join thousands at the DCR Hatch Shell in Boston for a fun-filled walk around the Charles River. Then stay and play, enjoying our cookout, entertainment, and more. Help make a difference in […]

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Christopher’s Inaugural Pumpkin Smash 2015

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Mr.Christopher’s Pumpkin Smash Please participate in the inaugural Mr.Christopher’s Pumpkin Smash, to help “SMASH OUT” MPS! It’s easy! All you have to do is: 1-buy a small sugar pumpkin 2-paint it purple 3-Friday, October 16th video tape you or a family member smashing your purple pumpkin! 4-Give a brief explanation of what you are doing […]

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