Tag Archives: mps1

Charlotte’s Ride 2018

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Please consider joining us AUG 5th 2-4pm for Charlotte’s Ride 2018 – Last year we raised over $5,000!! Lets beat that in 2018! Hanson Athletic Association 171 Reed St, Hanson, Massachusetts 02341 All up to date cruise details are posted Charlotte’s Ride Any questions: CharlottesRide@gmail.com or post here #CharlottesRide #CharlotteStrong #MPS #MP1 #HurlersSyndrome #SmashOutMPS #GoHarken #CrushitChristopher […]

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Meet Charlotte

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“Our 9 month old granddaughter Charlotte Condon, daughter of Kim O’Kane and Christopher Condon was born with a very rare and severe genetic disorder called Hurler Syndrome or MPS1, in which her body doesn’t produce the enzyme it needs to break down specific sugars. This affects every aspect of Charlotte’s poor little body – literally […]

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Happy 4th Birthday Bear!

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Happy 4th Birthday BEAR!

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Eversource Walk for Boston Children’s Hospital 2017

Why Walk? The Eversource Walk for Boston Children’s Hospital helps fund the exceptional care and groundbreaking research that are synonymous with Boston Children’s. Join thousands at the DCR Hatch Shell in Boston for a fun-filled walk around the Charles River. Then stay and play, enjoying our cookout, entertainment, and more. Help make a difference in […]

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